Tag Archives: Patients

A patient’s family bridges two worlds

Toward the end of my clinical rotations, I met Salma, a 34-year-old woman who came from Egypt with her family to the U.S. two years ago. Wearing a latte-colored hijab, she was here at the hospital to care for her father, who had a case of congestive heart failure exacerbation with pleural effusions. When deoxygenated… Read More »

FDA Approves Zolgensma (onasemnogene abeparvovec-xioi) Gene Therapy to Treat Pediatric Patients with Spinal Muscular Atrophy

FDA Approves Zolgensma (onasemnogene abeparvovec-xioi) Gene Therapy to Treat Pediatric Patients with Spinal Muscular Atrophy Print this page May 24, 2019 — The U.S. Food and Drug Administration today approved Zolgensma (onasemnogene abeparvovec-xioi), the first gene therapy approved to treat children less than two years of age with spinal muscular atrophy (SMA), the most severe… Read More »

Barriers to patients accessing their health data are falling

While the Office of the National Coordinator for HIT continues to remind providers of patients’ rights to electronically view, download and transmit their health information via application programming interfaces, many hospitals are already complying. Since 2014, eligible hospitals have been required to provide patients with the capability to get their information, and in 2017 nearly… Read More »